Our goal: Patients’ benefit

The Hereditary Angioedema Global Registry (HGR) aims to gather accurate data from throughout the whole Hereditary AngioEdema (HAE) community that will ultimately be used for patients’ benefit. The registry sets out to:

  • Improve the quality of care for all with HAE

    • Encourage the identification of new standards of HAE management and care through the measurement and comparison of the epidemiological and clinical aspects of HAE in the countries participating in the registry
  • Create robust data

    • Provide data for epidemiological research and identify groups of patients who may be eligible for multi-center trials in order to facilitate public health planning and to help prove the efficacy of modern therapies for patients with HAE

The HAE Global Registry will serve as a source for research and market information – and all data will be anonymized.

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I am interested in the HAE Global Registry and would like to be updated once the website is fully up and running


HAE Global Registry Foundation
10560 Main Street, Suite PS40
Fairfax City, VA 22030
United States of America

Contact email: info@haeregistry.org